Hello, My name is Maggie and I have nutritional issues that are driving me bonkers. I don’t know exactly what my nutritional issues are so I am groping around in the dark trying to find solutions. My doctors and health care professionals are not especially aggressive about treating me. As a matter of fact, they are complacent. That doesn’t mean I have to be. I know something is wrong. I thought it was just PCOS and carb-sensitivity. Now I’m not so sure.
So, as part of my fumbling and lurching from “perfect diet” to the next I have decided to try gluten-free. I have resisted this for 5 years. I am now so frustrated however that I am willing to try almost anything for relief.
I came to this through a couple of channels. First, a commenter on my blog suggested I should look into it. It made me mad because a score of readers have suggested this to me over time and the idea of living without wheat made me angry and sort of scared, so I said to myself “No Way! Not me!” I thought gluten-free was a new fad and that I was not about to jump on every fad just because it was passing my door.
Only as luck would have it, I happened upon this book about the connection between ADHD and Austism and gluten (wheat protein) sensitivity and casein (milk protein) sensitivty. So I read the book and felt ill. My oldest son has Autism–Aspergers Syndrome specifically. My youngest has ADHD and is on meds. Sigh. Then I looked up correlations between PCOS and Gluten Sensitivity and discovered there is a link.
So I did some testing on myself, 3 days with no gluten, then I had a low-carb tortilla. 5 Carbs, so if I experience discomfort I know it’s not from too many carbs. And guess what, about an hour after eating the tortilla I was uncomfortable, lots of tummy troubles and I thought huh! So then the next day I tried some M’N’M’s. Lots of carbs. No discomfort what-so-ever. How can that be? Could I be sensitive to gluten? Is this in addition to PCOS or is the gluten sensitivity what is causing my PCOS? I have no idea.
I will ask my doctor to test for gluten sensitivity when I see her next, well actually my nurse practitioner. And if she can’t do that then I will find someone else who can. Meanwhile, I will avoid gluten.
Also chatted with my guys about the stuff I found out and told them that next week, after payday, we would, as a family, do 2 weeks gluten and casein free. My oldest, the one with Autism, was unusually cooperative in his spirit. I found that providential. God provides for His children. After explaining to eldest son why and how we would do it, he agreed to give it a try. He lives off of wheat and cheese, so it will be challenging to say the least, but I intend to pray my way through it and try it anyway.
Physicians live by the oath “Do No Harm.” I figure a GFCF (gluten free casein free) diet can’t hurt any of us, maybe it will help us. We’ll know more in 2 weeks.
So from now to then I’m continuing my lowcarb regimen. And on Friday or Saturday I’m going shopping. And on Sunday (or maybe Saturday) we’re going gluten free to see what happens. And if things get better for all of us, great. And if they don’t, well then I’ll lurch on to the next idea that I stumble over in the dark.
So after thinking all of this through I wondered to myself, well what if the boy’s doctor or my doctor say none of us are gluten or casein sensitive and what if they think I’m a crack-pot? I hate it when our doctor’s think I’m a looney tune. So I chatted with my Mom about this and she reminded me that I do not have to think for the Doctors and I do not have to live with the doctors. I have to live with myself and with my boys. And it doesn’t matter if the Doctors agree with me or not. If I have success, then that is that. Stick with it. And if nothing changes, well then–nothing ventured, nothing gained.
This is revolutionary thought for me. I feel like I have multiple-personalities when it comes to dietary needs. I hop from one idea to anther and that must mean I’m crazy right? No. It doesn’t mean that at all. It means I’m a reasonably intelligent woman who has not yet found the right nutritional balance. I sense something is wrong and I want to correct it. This is not crazy behavior, this is sane behavior. I try something, it doesn’t work, so I try something else. It’s not as I feared, evidence of being flaky or nuts. Instead this behavior on my part is direct evidence of my desire to be well.
So yes, I have nutritional schitzophrenia. That’s okay. I will have until I am able to determine exactly what is wrong with me and how to fix it.
I have high hopes for gluten-free. If this is IT then I can finally rest and go ahead and start eating right. I want to eat right. I have such an incredibly strong desire to eat right, to nourish and love my body. I have tried every method of eating right I can, and some have made me feel better than others. And I will keep trying until I figure out what it is that is making me sick. Like when I had hepatitis and though I was crazy with anorexia. Like when I got PCOS and thought I was crazy with obesity. Both times I later found it was a disease causing my symptoms. Well this time I don’t think I’m crazy. I think there is a dis-ease. A problem causing my symptoms and slowly but surely I will continue until I discover what it is.
If anyone has an extra moment and feels moved by the Spirit, I could use a few extra prayers about this, for myself and the kids.